OK, I see where you are coming from and I actually can relate. I will say prayers for your daughter. God is the first person that we should turn to in such circumstances as He does have all the answers.
I am an outlier in many ways as well. I too distrust doctors. When I was diagnosed with stage 0 breast cancer I did not just accept my doctor’s treatment. I went to the web to do research. A certain actress’s book came up and though I was a bit confused as to how she would know anything about cancer; I looked into her claims. That was when I stumbled across the Science Based medicine website. After reading the article there I decided on going ahead with standard treatment in regards to having a lumpectomy and radiation but refusing the tamsulosin she was trying to cram down my throat for five years. Almost four years later and I’m still cancer free; I’m happy with my decision. My point is, there is nothing wrong with questioning the status quo, but for it to be effective; it needs to be done using the tools of Science. I refused the tamsulosin based on the fact that in studies, the difference of re-occurrence of cancer between groups who took it and groups who didn’t was very low. My thought process was that I’d rather risk losing a breast than endure five years of some really nasty side effects of that drug. Once I told the doctor that; she stopped arguing with me.
Look, my life is a poster child for “outlier”; I get it! I could spend all day saying how I don’t run temperatures and don’t even get me started on the weird way my brain works. My husband too has had such issues. When he didn’t improve after chemo treatments for leukemia, we were told that he was depressed. We went to a doctor for that for a few times but couldn’t afford to keep up the treatments. The medicine wasn’t helping so we quit with that too. a few years later, he was diagnosed with Parkinson’s. That leukemia morphed into Parkinson’s, his current doctor believes me. She is the one that suggested that the chemo caused his predisposed Parkinson’s to rear its ugly head sooner. Again, Science, in the end, made sense of things.
No, Science doesn’t get things right all the time. That is why it is always changing, we improve our knowledge by using the tools that we have to discover new things. We don’t reinvent the Scientific Method each time Science fails us. We use it to test another theory. Over and over again.